Most kids (and their families) are excited when their birthday comes around. In Bobby’s case though, Bobby’s birthdays are particularly exciting and something very special to celebrate.
Bobby has a rare brain malformation called Lissencephaly (also known as smooth brain). This little-known but life-limiting condition, brings with it epilepsy and a shortened life expectancy. There is no cure for this condition and, sadly it is rare for children to survive beyond the age of 10.
But Bobby is defying all the odds, particularly as he hit 10 years old just as the pandemic took grip on the UK. After such a fearful time and with his ongoing health needs, Bobby’s 12th birthday really is something to celebrate, and Sean was very happy to be involved.